Millennials and Dementia Caregiving in the United States, released by UsAgainstAlzheimer’s and the USC Edward R. Roybal Institute on Aging, explores millennial caregiving in the United States with the goal of enhancing our understanding of the experiences and challenges of young adults providing care for a family member or friend living with Alzheimer’s disease or other dementias.
The issue brief shows that one out of six millennial caregivers cares for someone with dementia. Roughly 42% of millennial dementia caregivers are sole caregivers and the overwhelming majority (79%) report that accessing affordable outside help is very difficult.
Provided below are online resources where they can find support.
AARP’s Family Caregiving site offers the expert advice, support and resources you need when taking care of a senior parent or other loved one. AARP is a nonprofit, nonpartisan organization that helps people 50 and older improve the quality of their lives.
Alzheimer’s Association: Dementia & Alzheimer’s Caregiver Center
The Alzheimer’s Association provides information and support for those in early-stage caregiving, middle-stage caregiving, or late-stage caregiving. Formed in 1980, the Alzheimer’s Association is the world’s leading voluntary health organization in Alzheimer’s care, support and research.
Alzheimer’s and Related Dementias Education and Referral (ADEAR) Center
The U.S. Congress created the Alzheimer’s Disease Education and Referral (ADEAR) Center in 1990 to “compile, archive, and disseminate information concerning Alzheimer’s disease” for health professionals, people with AD and their families, and the public. Reflecting its expanding focus on related dementias, the ADEAR Center updated our name to “Alzheimer’s and related Dementias Education and Referral Center” (still known as ADEAR) in 2016.
Family Caregiver Alliance, the National Center on Caregiving (NCC)
Established in 2001 as a program of Family Caregiver Alliance, the National Center on Caregiving (NCC) works to advance the development of high-quality, cost-effective policies and programs for caregivers in every state in the country. Uniting research, public policy and services, the NCC serves as a central source of information on caregiving and long-term care issues for policy makers, service providers, media, funders and family caregivers throughout the country.
GALAXY is a virtual gateway to a constellation of innovative initiatives that makes it easy for you to influence and participate in Alzheimer’s research. It showcases private/public partnerships and projects, supported through non-profit collaboration, that focus on modeling new online ways to support those living with Alzheimer’s and their families. It offers efficient social media channels to help affinity organizations share in and cross promote online and mHealth studies to their networks.
Lotsa Helping Hands is a caregiving app that helps you create a community of care around your loved one. You can invite family, friends, volunteers, and care aides to join and then manage everything from sitters and errands to appointments and family gatherings using an interactive calendar.
National Alliance for Caregiving: General Caregiving Resources
The National Alliance for Caregiving partners with other caregiving associations and groups to provide additional resources to help family caregivers address and cope with the challenges of caring for a loved one. Established in 1996, the National Alliance for Caregiving is a non-profit coalition of national organizations focusing on advancing family caregiving through research, innovation, and advocacy.
Roobrik is an online decision tools that help patients and their families make difficult health and care choices with clarity and confidence. They believe that informed and empowered patients and families can dramatically improve health and wellness outcomes and lower costs for all stakeholders in the continuum of care.